Neal T’s Story

male_1Hello! My name is Neal. I am 30 years old. I used to work a full time job and run my own successful small business. My nightmare first started when I was admitted into critical care with pulmonary failure. I noticed they kept changing bag after bag of Levaquin and Avelox vi IV over the course of a few days. The first symptom that I noticed was the sheer anxiety, panic and mental agony. I begged the nurse to please stop the drugs if only for a minute to give me some relief from the anxiety. Her reply was “sorry, we can’t. We are basically over-dosing you with this stuff to save your life.” I had not yet known the full extent of the price I would have to pay. The pneumonia gradually got better. I was transferred to progressive care. While in progressive care I experienced congestive heart failure, rapid heart rate (150bpm) and very high blood pressure. At the time that was extremely unusual for me as I had never experienced any of that in the past. Finally, I was released to go home. I really did not notice anything out of the ordinary until about a week after returning to my normal job as a Janitor. I would work for about an hour and my legs and feet would feel like I had worked 10 hours. Over the next three months I forced myself to go in to work and accomplish as much as possible before having to lay down in a secluded area for hours; crying from the pain. The pain progressed to the point of being so severe I was unable to work and lost my job. During this time the pain was so tremendous it hurt to wear clothing, and sheets rubbing across my feet in bed was horrific. Next, came the full body pain. My whole body felt as if it was in an “electrical storm”. Nothing eases this pain. The “pain attacks” will last anywhere from 20 minutes to 4 hours. Even after the “pain attacks” are over i’m still left with permanent full body neuropathy(every surface of my skin feels burned). Everything hurts. It hurts for people to shake my hand or hug me. Anything that touches my skin at any pressure hurts. Temperature consistency is a MUST. If i’m too hot or too cold the pain intensifies.I have involuntary tremors- to the point of kicking over tables. Now I have neuropathy in my stomach and my doctor is concerned this neuropathy may lead to my heart and eyes. At points my lungs do burn to the point of interfering with normal breathing. I do have a referral to Mayo Clinic in Minnesota for pain control. This has taken away all of the quality of my life. I live 75 percent of my life in bed at 30 years old. I have gone to 12 different specialists and 11 of them have told me that this “does not exist” “it is part of a bandwagon effect” or “this is psychological”. I was required to go through intensive psychotherapy sessions 4 hours a day for 30 days. It was deemed that this pain “was not psychological”. After laying in bed; in agony, for over a year now-it is incredibly insulting for a doctor (the people that are supposed to help) to say this is ot happening. Just shocking! I never thought at 30 years old I would have to say that getting up to get a glass of water is a major event!
Thank you!